Lysluggen nr 5 2024
Lysluggen nr. 5 2024 lagt ut på vår nettside for allmenn forlystelse.
NOAH har akkurat lagt ut en ny video om HPS i serien av deres informasjonsvideoer på deres YouTube kanal: NOAH Webinar Recording - The ABCs of HPS
NOAH Webinar Recording - The ABCs of HPS
"Everyone in the albinism community should know about HPS (Hermansky Pudlack Syndrome). Knowledge of HPS eliminates the risk of not knowing about something that may affect your well-being and makes preventative health management possible. HPS founder and president Donna Appell, RN provides an overview of this rare form of albinism."